Welcome to Rosie's Roses website!
We came up with the name "Rosie's Roses" after my daughter Rosie, who, by co-incidence was born with cystic fibrosis and the significance of Roses in the search for a cure for CF -"65 Roses"!
Our Great Strides Walk team is called Rosie's Roses and also my fused glass/craft business to benefit CFF is also called Rosie's Roses! Our CF Cycle For Life is Team Riding For Rosie.
Life is about taking time to smell the roses!
About us!
My daughter Rosie was born with the genetic disorder, Cystic Fibrosis. When she was only 2 days old she had to have part of her intestine removed, we learned 2 weeks later that she had Cystic Fibrosis. The diagnosis was devastating and took many months to accept that "normal" life for Rosie might be different from our idea of "normal". After a rough start she came home from hospital and thanks to the many medications and therapies she takes and does daily she is doing well. Rosie graduated from high School and is now attending college - this is a huge milestone and something we were not sure would happen when she was younger! Great progress has been made in the treatment of CF but we need a cure. We are faced with many challenges as she gets older and realize in order for her to live a long and healthy life we must do everything we can to help find a cure for her. At the moment there is NO CURE, we want a cure for Rosie and hopefully you can help us find a cure for her and every other family dealing with Cystic Fibrosis
You can do this many ways
- Walk with us or sponsor Team Rosie's Roses in GREAT STRIDES - the third Saturday in May every year.
- Cycle with us in Seacoast Safari.
- Purchase goodies from ROSIE'S ROSES Fused Glass Creations -ALL profits go to The Cystic Fibrosis Foundation.
- "Like" our Rosie's Roses Facebook page. Also rosiesroses98 on Instagram!
- Keep up to date with CF developments at www.cff.org.
This is Rosie, only a few days old after she had part of her her bowel removed as a result of miconium Ilius at birth which lead her to being diagnosed with cystic fibrosis. It was a rough start, but after 6 weeks in hospital, she finally came home and has been on meds and treatments for CF ever since then.
In April 2012, we had the honor of meeting Robin Roberts from Good Morning America, and presented her with a "Rosie's Roses" Glass pendant, what a great lady!
Meeting New Hampshire Governor, Maggie Hassan
at The State House, Concord, NH,
where she presented us with the proclamation for CF Awareness month
