Welcome to Rosies Roses website!
Please take a minute or two to browse the website and find out about how you can help find a cure for Cystic Fibrosis!
My daughter Rosie was born with the genetic disorder, Cystic Fibrosis. When she was 2 days old she had to have part of her intestine removed, we learned 2 weeks later that she had Cystic Fibrosis. The diagnosis was devastating and took many months to accept that "normal" life for Rosie might be different from our idea of "normal". After a rough start she came home from hospital and thanks to the many medications and therapies she takes and does daily she is doing well. We faced many challenges as she got older and realized in order for her to live a long and healthy life we must to everything we can to help find a cure for her. At the moment there is NO CURE and life expectancy is only 37 years, we want a cure for Rosie and hopefully you can help us find a cure for her and every other family dealing with Cystic Fibrosis
You can do this many ways
- Walk with us or sponsor Team Rosie's Roses in GREAT STRIDES - the third Saturday in May every year
- Purchase goodies from ROSIE'S ROSES Fused Glass Creations -ALL profits go to The Cystic Fibrosis Foundation. You can purchase Rosie,s Roses Fused Glass for CF at PJ MacWilliams Bon Bon, Route 101, Amherst or email me fo rmore details
- Join us at one of our fundraisers - Taste for a Cure, Peddlers Daughter, Pampered Chef party, Craft shows.... see links above for more details
This is Rosie, only a few days old after she had part of her her bowel removed as a result of miconium Ilius at birth which lead her to being diagnosed with cystic fibrosis.
We had the honor of meeting Robin Roberts from Good Morning America -
we presented her with a "Rosie's Roses" Glass pendant, what a great lady!